An Evening to Inspire: The Annual Party for a Cure

Every year, an ordinary room in Maryland undergoes an extraordinary transformation. What was once a simple space becomes a dazzling spectacle. Tables adorned with a stunning selection of donations set the stage for a night of excitement and generosity.

With well over $1,400,000 raised, this non-profit has made substantial strides in supporting families affected by muscular dystrophy:

By directly channeling donations to where they’re needed most, Party for a Cure ensures that every contribution counts.

Naomi Hess, Kelly Heck, Hannah Fallon, and Claire Menke at the 2018 Party for a Cure.

A Nonprofit, Pure and Simple

Party for a Cure (PFAC) is a Maryland-based nonprofit organization that has been making a significant impact on the lives of individuals affected by muscular dystrophy, ALS, and related debilitating diseases. Taking root in 2008, PFAC has grown from a local event to a powerful force, raising over $1,400,000 to support its mission:

“Together, we can help free kids and adults from the harm of these muscle debilitating diseases by funding research breakthroughs across diseases, caring for individuals from day one, and empowering families with services and support in our hometowns.” [source]

Led by a dedicated volunteer board, PFAC exemplifies the power of community in aiding those facing life-threatening illnesses. The organization’s commitment to its mission is evident in the countless stories of individuals whose lives have been positively impacted by PFAC’s support.

Karen Barbour, founder, with the Ashton family at the 2019 Party for a Cure.

The Visionaries Behind the Mission

While established in 2016, Party for a Cure started over a decade prior with a scribbled note on Karen Barbour’s (The Barbour Group) desk that earnestly stated, “Help kids in Maryland.” This idea triggered a domino effect that would soon launch her into the world of philanthropy that would drive her for 20 years.

A serendipitous phone call from the Muscular Dystrophy Association of Maryland (MDA) in 2004 set the stage for Karen’s philanthropic journey. The MDA reached out to Karen, inviting her to contribute to their cause. Little did they know, this seemingly ordinary call would ignite a wildfire, permanently reshaping many lives for the better.

Karen’s first foray into fundraising was a unique event known as the ‘lockup.’ She was driven to a local restaurant in a police cruiser and ‘imprisoned’ until she met her fundraising goal of $3,000. A few hours later, Karen was free (despite some clients playfully offering to pay more to keep her locked up) and she’d blown the goal out of the water.

Karen’s fundraising efforts continued to gain momentum, with each subsequent ‘lockup’ event surpassing the previous one. Recognizing her potential, the MDA encouraged Karen to take her efforts to the next level.

In 2008, Karen teamed up with Gina Clark from the MDA to enlist the support of Lee Gaines (Gaines and Company) for the inaugural Party for a Cure event. Held at the Engineers’ Club, the event raised a significant $17,000.

Despite facing challenges with the MDA, Karen and Lee remained committed to their vision of providing direct support to families in need. In 2016, they co-founded Party for a Cure as a 501(c)3 charitable organization. While Lee retired from the board after eight years, his support for the organization remains earnest and unwavering.

To continue the important work of Party for a Cure, Karen welcomed Joe Laney (M.T. Laney Company, Inc.) and John Vardavas (Value Point Valuations, Inc.) to the board. Their expertise and dedication have been invaluable in carrying forward the organization’s mission.

Since its inception, Party for a Cure has been dedicated to maximizing its impact. The organization has consistently prioritized direct assistance to families, ensuring that the maximum amount raised is used to address their immediate needs. Before the COVID-19 pandemic, Party for a Cure was raising nearly $100,000 annually, all of which (excluding event expenses) was distributed to families in need. While recent events have brought in fewer proceeds, the organization continues to provide immediate assistance as long as funds permit.

“Lee Gaines did a lot to get this pushed forward. He really opened up his contacts and got a lot of people involved and they stayed involved. So without him it would not have been as grand, I can tell you that. ” -Karen Barbour

The Families Behind the Cause

The Fallon Family

The Fallon family was the first family that PFAC spotlighted for support. Their story is one of immense challenge and resounding triumph. Hannah, a young woman with significant physical disabilities (whom Karen first met at her first lockup event), and her family had been struggling in a home that was no longer functional.

Recognizing the immediate need, PFAC embarked on a comprehensive renovation project. The house was gutted to replace outdated plumbing, electrical systems, HVAC, support beams, drywall, and flooring. The exterior of the home was also transformed with a new roof, siding, fencing, sidewalks, steps, and landscaping. It was difficult to access the house via the back entrance, so a much-needed front entrance with a covered porch was renovated after reconstructing the back entrance, providing two safe and accessible ways for the family to enter and exit their home.

The family’s two children, both living with disabilities, required special accommodations. The reconstruction was framed around being fully accessible, with ramps, wider doorways, and adapted bathrooms. The renovation also included the installation of a new kitchen with wheelchair-accessible appliances, making it easier for the family to prepare meals and take care of themselves.

But the renovation went beyond physical improvements. The family was empowered through the experience, learning valuable life skills and encouraged with their independence. Hannah, for instance, was able to experience the simple joy of getting her own water from a wheelchair-accessible refrigerator dispenser for the first time in 18 years.

During the 8 month renovation, the Fallon family temporarily moved in with Karen, with frequent visits from their six grandchildren. Despite the challenges, the family remained positive and grateful for the support they received.

By addressing the family’s immediate needs and creating a safe, accessible, and beautiful home, PFAC not only improved their quality of life but also provided them with a sense of hope and security. The transformation of their home has not only improved their quality of life but also increased its value. This newfound financial stability provides a safety net for the family, easing future worries and opening up new possibilities.

A special thank you is owed to the many contractor clients and industry contacts who helped with the extensive renovations for the Fallon family. They donated their time, materials, and labor to help significantly defray the costs of this life-changing project.

The Eggers Family

The Eggers family’s story highlights how tremendous community support can be; without it, many of these families are left without support or hope. Bobbi Jo and her husband faced numerous challenges, including a dangerous living environment for their family.

Recognizing the dire situation, PFAC stepped in to turn things around. A complete home renovation was undertaken, including a substantial addition that provided much-needed space and comfort. The kitchen was updated and expanded, flooring and vinyl siding were replaced, and a new HVAC system was installed to ensure a healthy living environment.

Despite these improvements, the family’s challenges persisted. They have two children of their own with Duchenne Muscular Dystrophy, a devastating disease that gradually weakens muscle strength. Their compassion and strength were further tested when they adopted a third child with the same condition, who was in his late teens. He came to live with them after his grandmom, who could no longer take care of him, was dying of cancer.

Through these trials, the Eggers family has demonstrated incredible courage and resilience. Their story serves as an inspiration to us all, reminding us of the power of human kindness and the importance of supporting those in need.

Chris & Krystal

In 2023, the organization focused on a young family in need: Chris, Krystal, and their three-year-old son. The family was facing desperate circumstances, struggling with poverty and the threat of homelessness.

The community was once again rallied and support came through in spades during a fundraising event. A flood of donations allowed an immediate reprieve for the family. PFAC helped them secure stable housing, pay off debts, and even provide essential furnishings for their new apartment.

The family’s new home in Frederick offers a much brighter future. With access to a swimming pool, a porch, and nearby pastureland, their young son can now enjoy a carefree childhood. This transformation has been truly life-changing for the entire family.

“I cry sometimes over it because I can’t believe how they’ve just accepted their life and they feel like no one’s going to help them. And when they get this kind of help, they break down.” -Karen Barbour

Naomi

Naomi has always defied expectations. A once-frail child, she blossomed into a brilliant young woman, graduating with honors from Princeton University. She played a key role in making historic buildings accessible to students with disabilities and was among the first to enter them.

Today, Naomi lives independently in Philadelphia. We’re incredibly proud of her accomplishments and continue to support her in any way we can. Whether it’s helping with rent or offering advice on public policy, she knows that PFAC is there to support her independence.

2024 Party for a Cure: Kathy & Hannah Fallon; Dr. Neil Porter, University of Maryland specialist; Dominic Pope, Gaines and Company safety director.

Fun, Fundraising, and a Whole Lot of Heart

Since its inception in 2008, Party for a Cure has become an annual beacon of hope, bringing together a community united by compassion. Each year, this joyous event raises meaningful funds to support families battling overwhelming medical challenges.

Many expenses are not covered or supplemented by insurance or subsidies, making life even more difficult for these families. Wheelchair batteries cost $2,000, while a used handicap van is over $50,000 (new ones being over $100,000). The cost of a service dog starts around $15,000; without one, the smallest inconvenience can become overwhelming or life threatening. The funds raised through these events have made a tangible impact on the lives of countless individuals.

“Watching these kids grow and overcome adversity has completely changed my perspective. Their resilience and joy have touched my heart, and I’m honored to be a part of their journey.” -Lee Gaines

By fostering a sense of community and shared purpose, Party for a Cure has not only provided financial support but also offered emotional solace to families in need. The event has become a platform to celebrate resilience, honor the courage of those affected by muscular dystrophy, and inspire hope.

Gaines and Company Site Development is a full-service site development company specializing in underground utilities, grading, excavating, erosion controls, and road work. With over 70 years of experience, the organization serves home builders and developers, general contractors, and military installations, as well as state, federal and municipal authorities, throughout Maryland, North Carolina, Washington D.C., and Delaware.